Giving Thanks for Work and Its Lessons

wishing can be tricky

A new board game, bought by my family, challenges players to answer random questions picked from a stack quickly. If they cannot answer, they lose their card. Sounds simple, right? Still, some questions left us stumped, including for my granddaughter, “A genie has appeared and will grant you three wishes. What do you choose?”

The first thing that makes that difficult to answer is most of us have over three wishes. Then, the query trips us by making us hover between sheerly personal wishes and hopes for all humanity. Finally, of course, the player is on the spot with people who know them eager for answers. The proper point of the game is not winning but getting to know one another more deeply.

Despite some hesitation, my granddaughter provided a balanced list of three things. Her wishes were an end to poverty and hunger, a billion dollars for her parents, and never having to work.

never working! Good or bad?

The last one threw me for a loop. It isn’t anything I would have ever thought to wish for. Nor, as I ponder the prospect, does it seem appealing.

Just the opposite. As Thanksgiving Day approaches and we all reflect upon those gifts for which we are most thankful for, at the top of my list is WORK.

thanks for work

From my first job to my retirement, work provided personal growth and a sense of identity. Throughout high school, I babysit our neighbors, four children, 3 little girls and an infant son. I gained valuable insight into the psyche of small children that would serve me well throughout my life. I learned as well that we fail children all the time, but if we have forgiven their small foibles, they will forgive us our major ones. They taught me to say with honesty, “I’m sorry” and “It’s okay.”

“I long to accomplish a great and noble task, but it is my chief duty to accomplish small tasks as if they were great and noble.” – Helen Keller

scrubbing thankfully

Also in high school, I took a job covering a local doctor’s office on weekday evenings when the staff had left for the day. The tasks included cleaning blood off the surgery floor and accepting money for doctor bills after hours. Switching from “cleaner” to “receptionist” defined multi-tasking for me long before I heard that term.

Visualize wringing a smelly rag, washing your hands, and cheerfully calculating a client’s bill, despite their questioning. It was nitty-gritty work for which no one ever thanked me. I left when my shift finished and received the check for $5/week in the mail. I found, however, that I could be my own cheering squad and take pride in minor tasks accomplished well. Praise, I discovered, however gratifying, isn’t necessary. You can develop your own sense of self-worth.

“All labor that uplifts humanity has dignity and importance and should be undertaken with painstaking excellence.” – Martin Luther King, Jr.

unnoticed, unthanked

This awareness came to my rescue through several other work situations. Throughout college, I served in the college dorm to earn tuition, room, and board. No tips, of course, I had to be my best judge of how well a mealtime went and not depend on the generosity or the stinginess of those I served. Wait staff bears the complaints of diners for mishaps, real or imaginary, of other members of a dining room staff. Being gracious enough to accept the slurs with an apology and without pointing fingers is as much a part of being “good” as being adept at balancing plates.

thanking appraisal

That same principle worked for me in other positions. In my roles as a caseworker, teacher, and professor, I was regularly evaluated. Others judged my work by systematic standards or personal reactions. I didn’t ignore these assessments, but I took them with “a grain of salt,” i.e. I improved their flavor with reminders of how hard I had worked and what I knew had gone well.

defining work

Work has been a Ying/yang experience–without defining me, it has helped me define myself. I am who I am for many reasons, but my working for a living has been a major contribution to the ultimate definition.

For that reason, this year I choose to be thankful for WORK.

Of course I also say “I am a woman; I am a wife; I am a mother.” Those roles are the heart of my being. But I am better at all of them because I am also a WORKER. Thus, although the paychecks stopped a decade ago, I still “work.” I write and I need all the confidence I gained in those other roles to keep my writer self going.

“The highest reward for a man’s toil is not what he gets for it but what he becomes by it.” – John Ruskin

John Ruskin was a Victorian writer, philosopher, and art critic. 

Gratitude Quotes for Workers

person typing on laptop
Photo by Ron Lach on Pexels.com

Crafting Relatability

Johnny's First Communion with Grandpa and Grandma
make it relatable

As I’m sure you all know by now, if I am attempting to find a press for my memoir. I dream of sending you a copy and begging you to urge your friends to buy one of their own.

Right now, as I sat at my desk and forge yet another query letter, my attempt feels more like “wish” than an effort. I’m following the rules, jumping the hoops, but as yet I haven’t been able to grab the “prize.” But authors Jane Friedman and Deborah Williams have recently published posts that encourage me to keep going.

what is relatability?

A good memoir, they claim, must have the same elemental attribute that an excellent novel possesses. It has to be relatable. That might seem like a nebulous, hard-to-define quality. Writing is as much craft as art. There are concrete tools that writers can employ to engage the reader. Used wisely, they make a reader exclaim, “I really get this!” When readers sync with a writer this way, they literally immerse themselves in your story.

you are not alone

Someone reads a book and a gut feeling tells them, “I get this,” or “I can totally relate to this.” That doesn’t mean their life experiences mirror those of the author. Rather, the language dives deep inside and touches them, their sensibilities. They feel both known and not alone. The author’s background and situation need not mirror ours for this to happen. Our worlds can seem to belong to alternative universes. Yet, we understand their language; we sense their anger, despair, joy, satisfaction.

I’ve never lived in the desert or been a successful career woman. Yet when in The Glass Castle, Jeannet Walls spots her mother rummaging in a dumpster, it spurs up unsettling emotions. that resembled my own complicated relationship with my mother. Her moment raised for me issues I had, like Walls, buried and tried to forget.

Half of a Yellow Sun depicts Biafra’s passionate struggle for freedom. It’s an important and heartbreaking moment in history. The reader, however, is bound to the page, not by the grand sweep of political turmoil, but by the evocative way in which the author invites us into the lives of unforgettable individuals.

Readers may weep for these characters. At the same moment, they feel less alone in their own uphill battles.

I bring relatability to my memoir by incorporating my senses to recount my family’s fight against a hidden foe. I “zoom in” to watch my granddaughter sewing a rage doll for her dying aunt. I bend down with the priest, who tries to explain death to a six-year old.  Can reader put themselves in a corner of the room as we experience each setback? Do they want to beg the doctors for better answers? Do they wish they could offer some solace when my child dies? Then, I have achieved my goal.

Provide Visual Cues

Life itself is always in motion-whether this is inner turmoil, outside chaos or daily routines. Even in the quietest moments, there are subtle movements that convey the mood. For my memoir, doctors’ offices and hospital rooms set the stage for many strategic moments in our narrative. Kristy and Johnny’s reactions and responses add a unique pace to the memoir, even in formal settings. Throughout the memoir, I strive to make their shining stars sparkle even in times of utter darkness.

Vulnerability, the Powerful Tipping Point

As authors, we have to ask ourselves how much of the “Narrative I” are we willing to reveal. But if we are holding back, we lose our readers. I learned to find the level of disclosure that felt comfortable -and push it back to the “edge of what seems possible,” and go for it. That tipping point is where we find the connections that make writing its most powerful. That’s what I’ve done. At least, more than I thought I could at the beginning. I’ve been as honest as possible about the moments that overwhelmed me and despair raged with hope. Making myself vulnerable, open to critique and judgement reveals my humanity, makes me one of you. That’s relatability.

I truly believe I’ve written a relatable memoir. I hope you can read it.

Krsity on the way to school with Martha

Like, But Different From

writers are like, but different from actors

Writers are like, but different from, actors. Just like actors, writers can suffer stage fright. Actors rehearse their parts to perfection. They don carefully chosen costumes and make-up. Yet, at when they are about to step onto the set, that seemingly authentic rendering of reality, it all swims away from them. They can neither move nor speak. Writers freeze in front of our computers at the moment when we need to hit send and speed a query letter to an agent or publisher.

my memoir-like, but different from other memoirs

Is this book ready for a professional review? It doesn’t matter that we spent hours, days, weeks, months crafting this piece. Gone is the reassurance of writing workshop colleagues. In vain do we remind ourselves how many times we’ve edited and reedited the work. May it could be better. Or worse, was it ever any good at all? We might think our work is ready, but we worry if our query letter is persuasive.. Have we piqued an acquisition editor’s interest? Did we pick up on the right cues from what the publisher says they are looking for?

what publishers want

And what is it publishers are looking for, anyway? It’s like, but different from what they say in submission forms. Here’s what they say they are seeking. They hope their books will capture the imagination and share arresting elements on lived experience. They aim to print books that are both engaging and consequential of the highest literary merit and relevance. These books must be enlightening and inspirational. The key to all these elements, editors agree, is quality, the individual author’s ability to tell a good story.

Publishers seek books that are creative, engaging, well-written, relevant, enlightening, inspiring, and commercially viable. How does an author convince the acquisitions editor of this potential? Look for the answer in the phrase on submission forms: “Include additional information like the target audience or comparable books.”

like a best seller, but different

That brings us to the rather cryptic title of this Blog Post, “Like, But Different From.” What the publisher wants to know is what book or books like yours have sold well? Why would it be likely to draw the same audience? At the same time, they expect you to show that your book is also different from these other narratives in important ways. You need to argue that you bring something new to the argument or add to the ongoing story-not simply repeat what has already been said.

This principal is like one taught by Marian Roach Smith in her Memoir Project. My memoir’s theme must be a universal, one that resonates with many other people. My personal story is one example of that universal. When I took Marian’s class, she helped me see the theme of my memoir in this way:

What did I endure (suffer) so that I could endure (triumph)?

ying/yang of endure

I worked tirelessly to find solutions for Kristin and Johnny’s physical and mental disorders in both the health and education sectors.. I suffered because it never seemed to bring any change and things just kept getting worse.

I succeeded by being strong and achieving goals as a parent and more, thanks to my ability to give Johnny and Kristy the best chance at a good life.

an example of the universal

Like other mothers’ memoirs, my book explores the experience of raising children with disabilities and the self-discovery that comes with it.

It differs from many other narratives in that there is no eventual triumph over disability and disease. The triumph is not so much in the actual win, but in finding a community that takes care of Johnny and Kristy with us.. The book also tells a bit, but not enough, of the untold story of Misericordia, a place where angels truly live on earth.

 

Rainbow over Misericordia

 

What Am I Trying to Ignore?

Stuffed monkey covers eyes
“What am I trying to ignore?”

This is a question that Jane Friedman threw out on her blog, Electronic Speed, two years ago. (jf@janefriedman.com, Sat, Nov. 27, 2021) I wasn’t ready to deal with it, but knew I’d need to confront it before my memoir would ever make it into publication.

being overwhelmed?

Some close friends have read brief parts of the memoir. They sometimes say I I ignore how totally overwhelmed I felt as I coped with the challenges presented by two children with complex disabilities.

I ask, do I leave that reality out of the memoir or did I ignore it at the time? If I had let those challenges overwhelm me, could I have coped? If I couldn’t have coped, what would have happened to my children? Sometimes every parent asks themselves some version of that question.

not talented enough?

A more nagging concern is the fear that I’m ignoring, that I can not really pull off a successful memoir. It’s hard not to suspect my beloved husband, who tells me over and over how beautiful my writing is. After all, he is prejudiced in my favor-unlike the readers in my critique groups who minutely question details such as sentence construction, overuse of adverbs, improper period spacing, etc. But then I tell myself, their job is not to tell me what work is great. It’s letting me know how to improve. That only results from constructive critique.

story is too sad!

There’s the nagging doubt about the deep tragedy of our story. As a friend said, “It’s all so sad. I’m not sure people want to read about that.” She makes a good point, but readers will take on a tough narrative if it’s interestingly written. Nothing is all sweetness and light. Nor is parenting children with challenges all doom and gloom. I include plenty of light moments, like this one:

not always

One of the striking differences, I claim, between Kristy and Johnny is how much she loved to create works of art and how he refused to so much as pick up a crayon. Thus, one Friday afternoon upon entering Johnny’s apartment at Misericordia, I got the surprise of my life. There on the wall next to the TV hung a bright abstract, multi-colored, three-by-three framed painting, signed “John Ward.”

“Johnny couldn’t have painted that,” I challenged his caretaker.

“Oh, but he did.” She said, but giggled as she spoke.

“How did you possibly motivate him to paint anything, let alone such a complex piece?” I asked.

“Well, we wanted to hang a work of art by each guy in the apartment. All the other men were excited to take part, but every time we gave Johnny a paintbrush, he threw it on the ground. Then Sara got her brilliant idea. She spread an enormous piece of paper right where the brushes were landing. She handed him one brush after another, each with a different color. One by one they hit the floor, splashing colors in every direction. You can see the result is lively and almost looks purposeful.”

Staring at my son’s “creation,” I laughed so hard my sides were splitting. That was Johnny. Life was never dull with him around.

The above vignette is just one of the many charming stories the memoir includes. It’s not a simple tragedy, but also a triumph of love and joy over the worst that life can throw at us. https://julewardwrites.com/committed-relationships/the-notion-of-fixes-and-cures

no end to questions

But other questions mount up. Is it too long? Are the chapters balanced enough? I’ve revised it nine times. How can that not be enough?

So, what is the awful TRUTH that I’m really trying to ignore?

Friedman writes that what we are trying to ignore is usually a problem that won’t go away until we do something about it.

the truth

For me, it’s acknowledging that I’m finished writing. It’s time to work on moving the manuscript toward publication. Just thinking about the process daunts me. There are many avenues to publication, but despite the many paths, few debut authors actually find their books on the bookstore shelves.

Dwelling on that reality makes me hesitate to try. Why put so much energy into something that is sure to fail? Yet truer yet is that if I never work toward publication, if I ignore even that slim chance, then failure is certain rather than possible.

“Resolving the problems I am most afraid to confront is where progress lies. It’s insanely hard psychologically, but worth it.”

https://mail.google.com/mail/u/0/#search/Jane+Friedman+What+are+you+ignoring/FMfcgzGllChzgDxQDRVbDSKsVqtbGdNq

Woman and old memoir

Tiny Brick Home

At the zoo with the girls
still writing, almost there

If it seems to you, dear readers, like I’ve been writing my memoir for a decade, it feels even longer to me. The first step, the part I described to you as “vomit draft,” went swiftly. Since then, it has been a long, painstaking process of sorting the chaff from the wheat. Determining which moments best exemplify what it was like to mother my extraordinary family challenged me daily. Along the way, I have had to cut some favorite memories from the book-length memoir. Rather than have them disappear into the ether, I have from time to time chosen to share the “left-out” moments here on the blog. Today’s post is one of those times.

seeking a city home

In December, the post about Betsy’s birth ended with our family’s move back to the city of Chicago from the Western suburbs. In the memoir itself, this move is glossed over to make room for more compelling moments in our family life. It was, however, not without a certain amount of drama.

Once Jay and I made up our minds to move, we spent the next four weekends trudging into the city, seeking a new home. Wishing to stay close to the park and the zoo, we followed leads to rentals on the streets within walking distance of those locations. Most apartments in the area were located old three-story brick buildings. Although we were willing to take on the three-staircase climb to the right apartment, we couldn’t locate one big enough for our family. We tried the new high-rise buildings that now lined the park from Michigan Avenue all the way to Sheridan Road. Again, the apartments were smaller than we had hoped. Kids and their equipment take space. And time was running out for us.

Jay and girls
Lots of kids; lots of stuff

goodbye suburban home

As soon as we had decided to move back to the city, we had put our Western Springs house on the market without using a real estate agent. We held an open house on a crisp February Sunday. The house sold late that afternoon. It completely took us by surprise. When we had purchased the home three years before, it had been on the market for six weeks. Having been in such an emotional rush to get back to the city, we had done no market research. We didn’t know that the demand for single-family dwellings and urban rentals in the Chicago metropolitan area had skyrocketed. We had underpriced the house. The young couple who saw it that day knew immediately they were getting a bargain and had snapped at it.

now what?

Instead of being upset, we were relieved. I was especially happy that I wouldn’t be spending weeks trying to get and keep the house inspection ready. That could have proved impossible while I cared for three children under the age of four. But with our home sold, the pressure to find a city dwelling intensified. We continued to find apartments that had one of two drawbacks. They were too small or too expensive.

first city home

So we finally found the affordable sublet at 2400 Lakeview. We were so relieved that we jumped at it. Although extremely modern and lacking the charm we craved in a home, it was enormous. It had a huge main bedroom and two other spacious bedrooms, as well as a good-sized kitchen-dining area and a big living room. The entire apartment faced west, with floor-to-ceiling windows in every room. Best of all, the building’s front doors opened right across from Lincoln Park and the Zoo was two blocks away.

the venture begins

Six weeks after Betsy was born, the moving van pulled up to the tiny clapboard house in Western Springs. Three husky guys loaded our six rooms of used furniture into the van within a couple of hours. But it took them the entire rest of the day to get it all up the service elevator at the glass tower we had chosen for our new home. Almost as soon as we moved in, we realized we had made a terrible mistake.

this won’t work!

The apartment confined me and the children indoors more than expected. Getting two toddlers, their tricycles and a baby in her stroller onto the elevator before it closed turned out to be an ordeal I didn’t undertake lightly. I had looked forward to sunsets, but hadn’t realized that all afternoon, I would need to draw the drapes against the glaring Western sun. The sunless rooms depressed me, but the girls needed to nap and I needed to fix dinner. I had expected to meet other moms in the park, but met only nannys. We started looking for a better living situation.

small brick home

We did not find another apartment along the park but discovered a cozy little brick townhouse just two blocks away at 515 Belden. Besides two bedrooms and two baths, it had a basement family room. The kitchen was tiny, but the living room had a real wood-burning fireplace and sliding doors led to a small enclosed patio. As a true bonus, the townhouse came with a designated parking space, an asset worth its weight in gold in the crowded city.

this will work!

There was one glaring difficulty. The house’s three stories were accessed via a winding, open iron staircase. Could it possibly be safe for our three little girls? Especially if you considered that the oldest had epilepsy. The cozy charm of the house held us so enthralled we convinced ourselves that this staircase was not intrinsically more dangerous than any other. After all, we wouldn’t be living in one-story homes all our lives.

settling in

The townhouse was one unit of sixteen that formed a rectangle around a central courtyard of connecting walkways and raised flowerbeds. Most of the residents were couples, but it thrilled the three other families in the complex to have us moving in. Our most immediate neighbors, the Hauns, were a godsend. The mom Dee was a nurse to whom I often turned to for solace and advice, as Kristy’s epilepsy became more serious. Their younger daughter Evie became the girls’ babysitter and my mother’s helper for the next several years. She was the first of many young women without whom I am convinced I could not have survived with my sanity intact. Evie remains a dear friend, even as I write today.

still a heart’s place

Also, while living in the tiny brick house, I met one of my dearest friends ever, Elizabeth Katzmann. Elizabeth, who now lives in Minnesota, recently visited Chicago. While she was there, she and her husband went to the “old” neighborhood and took a photo of 515 Belden, which they sent to me.

Receiving that photo inspired me to write this post-my 100th Blog Post!

Evie Haun and my girls
Evie, Betsy, Kristy & Carrie at 515 Belden

  • “Where we love is home- home that our feet may leave, but not our hearts.”

Some Sneak Previews

Jule and Johnny in the yard

For the last eighteen months, I’ve been inviting you to come along as I struggle to write a memoir. The memoir focuses mostly on the challenges and special joys of parenting my two children with disabilities. But I cannot isolate those experiences from the rest of my life.

I must, however, limit the number of pages-and, therefore, the number of tales I tell. Twenty original chapters slimmed down to twelve as I came close to the final version. So, some of those tidbits will appear as blog posts here on “Jule Ward Writes.” As the final version of the memoir shapes up, you and enjoy these vignettes. Maybe they will even whet your appetite for reading the book when I publish it.

To Be A Dolphin

“When I grow up, I want to be a dolphin,” my three-year-old son stated emphatically as I read him a picture book about adult occupations. Me, too, I thought, oh, me too!

Although thirty-eight years old and the mother of four young children, I still wondered when I would grow up. When would my real life begin? Could I possibly wake up and this nightmare I had stumbled into be over? I hugged his sturdy, warm body against my chest, rested my chin on his soft curls, and gazed into our little side garden. His sisters would return from school in an hour. From then until bedtime, a sort of low-key chaos would fill our old Victorian rowhouse. And that was the best-case scenario. That was if no one–not me, not my little boy, and not his oldest sister Kristy had a seizure.

epilepsy reality

If one of us went down, the chaos spiraled down into pandemonium. All other activity ceased. And God help us if there was soup boiling on the stove or a bathtub filling with bubbles. That couldn’t matter. First, turn the seizing person to their side, so they didn’t choke on their own saliva. Then, slip something soft under their head to avoid nasty bruises, and grab a clean towel if they were bleeding. Next, loosen their clothing so they could breathe a little easier. And wait. Wait until their limbs stopped flailing, their eyes returned to the center of their sockets, and their breath slowed to a more normal pace. And wait some more. Wait until they could get to a chair or bed to rest and come back to us, wake up, confused and sleepy, but ultimately fine. Or so we hoped.

On this autumn afternoon in 1980, my toddler son and I squeezed together in a singularly uncomfortable mesh and metal lawn lounger; his chubby legs anchored mine in place. A dozen large, hardcover books covered our laps. Johnny’s favorite, “Oh, What a Busy Day!” lay open to a page where winsomely drawn children imagined themselves as doctors, ballerinas, sailors, chef, and other sundry paying occupations. Clearly my son found the imagination of the illustrator quite limited as he announced, “When I grow up, I want to be a dolphin.”

never grow up

I nuzzled my nose into his yellow gold curls and thought, “And why not?” Deep between my heart and lungs lodged the certainty that evolving into a sea creature might be the only way I could keep from drowning in the reality of my everyday life.

I lived my here and now as a bizarre paradox. To an outside observer, it would seem I lived the life of a typical late twentieth-century middle-class, stay-at-home mom. Yet, every day, I woke up in terror that I lacked the resources to fulfill my role.
An illusionist, a trickster, I pulled coping mechanisms out of my ringmaster’s hat, creating a chimera of a brave, but beautiful life. I may have wanted to cry out, “I’ll never make it out of here alive,” but I said, “I’ve got this. It’s not that different from anyone else’s life, not really.”

brave front

My false optimism persuaded far too many people that I didn’t need their help, didn’t want their solace, would hate their compassion. There is no such thing as “normal,” I convinced myself. Everyone’s life has challenges. Everyone had to cope. I never wished to be someone else, to have a different life, to have different children. Rather, I yearned to live this life with as much savoir faire as everyone thought I did.

“Earth to Mom.”

Oh my God, the girls were home from school. I hadn’t heard them come through the back gate. Johnny had drifted to sleep in my arms, undoubtedly dreaming of dolphins.

“Kristy’s bus will be here soon, Mom,” Carrie’s voice broke into my reverie.

I carefully slid Johnny’s plump, warm body onto the chaise lounge. “Stay with him. I’ll go meet the bus and then we can have snacks.”

Back to reality, whatever that was.

 

 

Life Comes Full Circle

Israeli rooftops

My favorite guest blogger, intrepid world traveler, Nancy Louise, shares a favorite story with us this week.

a half-century ago

Fifty-one years ago my newly minted husband, and I took off on a month long round-the-world honeymoon courtesy of a Trans World Airlines interline rate of $98 each!

I had been working in the airline industry; my husband, Frits, was working for a tour wholesaler designing tours to Europe and the Middle East.

Our third stop on the journey was Israel. I had traveled a bit in Europe… but this was my first time to venture further. I was 24 years old and having grown up in the Bible Belt of the South in the US — I had never even met a Jew — much less a Muslim. Or a Palestinian.

overcoming naivete

My entire “understanding” of Israel was based on Leon Uris novels and gorgeous Paul Newman playing the lead in the movie, “Exodus”.

Frits had a business contact, Emil, in Israel and had written him (yes, an actual letter in the mail!) asking him to make us a hotel reservation. We arrived in Tel Aviv on New Year’s Eve of 1971.

Emil was there at the airport to meet us. He informed us we would not be staying at a hotel. We were going to stay with his family!

Emil lived in Jerusalem near the top of the Mount of Olives (next door to the Papal delegate). We pulled into his yard, which overlooked the Old City just at midnight as the bells of Churches pealed out the New Year. It is a treasured memory.

We stayed five days with Emil and his wife,Um Hani Abu-Dayyaeh. Emil gave us our own private tour guide, driver and car with Palestinian license plates. It was an eye-opening experience. Our guide, Mohammed, was a Palestinian Muslim who knew the Christian sites and their meaning better than most Christians did. With our Palestinian license plates, the Israeli military stopped us every half hour for “security” purposes. Mohammed also had to caution us frequently on taking photos of anything thing or person who could be construed as our “spying” on the Israelis. We were quite oblivious.

Emil and Um Hani also took us to a Palestinian Refugee camp—a sobering sight that I would never forget.

struggle to survive

In the evenings Emil and his wife shared with us their lives and struggles to live in a country that had been Palestine when they were born—- and was now Israel. Emil had sent his two sons to study in the United States to keep them out of the constant conflict between Israel and Palestine. That had been a painful decision, but one he felt necessary for their safety.

The family had lost everything in 1948 and again in the “Six Day War”of 1967. In January of 71 when we visited — Emil was unsure if his once more struggling tour company would survive. He and his wife were Christians—Lutherans — specializing in Christian Pilgrimages. And tourism hugely depends on the stability of the country.

Frits continued to work with Emil for the next two years, but then we moved from Michigan to Chicago, Frits joined KLM Airlines, and we lost contact with Emil.

many returns but no re-encounters

Over the years I have returned to the Holy Land a half dozen times mostly as a Tour Director, which allowed me no private time to hunt up the Abu-Dayyaeh family.

Now retired, I thought I had done my last tour of Israel. I was, however, persuaded in the summer of 2022 to join friends through Loyola University to come back for one last visit—a full-fledged pilgrimage.

Our itinerary was to include a dinner with students from a Palestinian University and a group of Palestinian Lutherans. My thoughts went back to that first trip and Emil and Um Hani. Their first names were the only ones I remembered. I thought, “How big could the Lutheran Palestinian community be in Israel?” I knew Emil had most probably gone “home to God” by now. It had been fifty-one years ago—and Emil had been well into his 50s when I met him. I wondered though if anyone would remember this hard-working, dedicated man and his family. So I texted Frits and asked him for the name of the fledgling company that Emil had started. Frits responded, “Near East Tours”.

an extraordinary coincidence

I was standing beside my tour bus when I got the text. And there in BIG letters on the side of the bus were the letters “NET”. I went up to our driver, Haseem, also wearing a shirt emblazoned with “NET” and asked him if “NET” stood for Near East Tours. He replied. “Yes it does!”
“And was the founder named Emil? ”
Haseem confirmed that Emil’s company was now owned by the two sons. One son, Hani, would be at the dinner that evening.

Hani and I had dinner together at our special gathering that night. I regaled him with my memories of that first Holy Land visit courtesy of his family—and how that eye-opening journey profoundly impacted my life and would lead me to be involved for many years in Interfaith endeavors with a group called “Soul Space,” of Jewish, Muslim and Christian women — with a mission of sharing the commonalities of our faiths through mini-retreats.

Hani informed me that his Mom, Um Hani, was still very much alive. Indeed, she had worked every day in the office until Covid hit! And at 96 she still lived independently in that same house where we had stayed.

full-circle experience

I asked Hani if she was still up to having visitors. I wanted to thank her for that life-changing visit so long ago. He called her there and then… and the next afternoon our driver, Haseem, took me in his own car up for a visit. When Haseem dropped me off, I told him I would probably only be a half hour. After all… she was 96 years old! When he returned… Um Hani had barely gotten started! Haseem joined me — and we sat riveted, listening to the stories of the very long life of this remarkable woman. Near East Tours had not only survived — it had thrived — expanding throughout the Mediterranean — to such places as Greece, Turkey, and Egypt.

It has been a “full-circle” life event for me. My first… and what for sure will be my last visit to the Holy Land impacted so much by this wonderful family.

I have long treasured these words from Mark Twain: “Travel is fatal to prejudice, bigotry, and narrow-mindedness” That journey was my first proof of Twain’s truth.

Over the years, Nancy’s friends and family have urged her to record her experience as a memoir. She has had so many, she feels she doesn’t know where to start.  I think the theme of “Then and Now” could be a wonderful organizer for her writings. Let us know in the comments if you agree.

Writers Need to Be Heroes

wonder woman illustration
silhouette of mountain under night sky with stars
Photo by McClain Crigger on Pexels.com

An Author’s Dark Night of the Soul

If one imagines a hero’s journey for authors, then your dark night of the soul is probably when no one believes in your work except yourself.

Jane Friedman <jf@janefriedman.com

Coming to the end of a first full edit of the memoir I’ve been writing for two years, I spiraled down into a dark night of despair. Who but me believed in my projected book? Was I my only audience?

In her blog, Electric Speed, Jane notes writers can fall prey to the temptation to internalize the “NO” they receive from editors or publishers. (Jane Friedman, August 5, 2022)

I have found one can also internalize the critiques that one receives from fellow writers, those colleagues you ask to access your work.

a sign from the universe?

If we treat that “NO” like a “sign from the universe” that our work doesn’t make the grade, our life as a writer can end right there. A chance encounter or an unexpected opportunity could reverse your fortune, but that’s not the likely outcome. What we need is the more straightforward solution—turn up the volume of your dedication to your work.

Straight forward, yes. Easy, no.

For that reason, Friedman suggests authors think of this task in terms of a “Hero’s Journey.” What is a “Hero’s Journey?” It’s a literary device that breaks a character’s story arc into discernable steps with a probable outcome. The journey typically has twelve steps in three acts. (Thirteen Step Guide to the Hero’s Journey)

If my writing struggle follows this arc, what would that look like? Here’s how I imagine it.

Act I—The Departure

Step 1The Ordinary World in which the hero is living their everyday life oblivious that they are called to something bigger. For me, I was retired and finally had the time to write I had dreamed about for years. I crafted two novels, several short stories and started a blog.

Step 2–The Call to Adventure: An incident transforms the hero’s life with a sudden jolt. As a member of several writing workshops, I read and edited memoirs for colleagues. The more I worked with these manuscripts, the more I knew I had to put down my other writing. I had to memorialize the lives of my two extraordinary children.

Step 3–The Refusal of the Call is where the hero doubts her abilities to accomplish the task. There seemed to be so many reasons this story couldn’t be told. It covered too many years. It was too complex. The mystery that shrouded it would be difficult to unveil.

Step 4Meeting with the Mentor: There were multiple mentors in my life. Friends and writing colleagues, as well as family members, all urged me to write this book. My Wanderer’s Writing Workshop colleagues promised to read and give advice through every step of the process.

Step 5Crossing the Threshold: Ready to head the call. The hero sets out on the journey.  As best I could recall, I wrote a chronological record of what had transpired during Kristy and Johnny’s lives. Then I constructed an outline on which to base my writing.

Act II – Initiation

Step 6Tests; allies; enemies: This is a long beginning of the adventure when the protagonist finds all their abilities stretched, discovers some new allies, and encounters expected enemies. I started the memoir in many places and gave it different emphases. Nothing seemed to work. New colleagues agreed to read the work. I took two memoir-writing classes, which both taught me techniques and bolstered my confidence. My memory and my self-confidence were constant enemies, begging me to give up this arduous task.

Step 7Approach to the inmost cave: Here, the hero faces the genuine challenge. It’s the call to the ultimate battle. In December, 2021, I finished a complete draft, seventeen chapters! It felt like such an accomplishment. But it was only a “vomit draft,” that is everything I had in me about our story. With the new year, I faced turning those thousands of words into a well-paced, page-turner that someone would want to read.

Step 8The Ordeal: This is the moment of truth where the hero dies, even if metaphorically, and must be reborn. For the last eight months I’ve “killed my darlings” as the jargon goes in the publishing world. With each part of the memoir that I chop from the final draft, a part of me goes with it. My hope is the final product will be a true rebirth.

Step 9The Reward: The hero has achieved a major success. When I finally believe that I have edited my manuscript to where it can be offered for publication, I’ll have reached this step. But I’m not there yet.

Act III –Return

Step 10The Road Back: The Hero returns home with the reward. Once I have what I am convinced is a publishable work, my journey will be to decide whether to self-publish or offer the memoir to a traditional publisher. Either of these will be a long, painstaking trek, but I’ll be buoyed up by having finished the manuscript.

Step 11The Resurrection: The hero faces a major threat, often the threat of death itself. For me, this would be if they published my book, and no one buys it. I know absolutely that getting it out there will not be enough for me. I’ll need the affirmation that someone values it enough to pay for it.

Step 12The return with the Elixir: After this, the hero is no longer the same. The challenge has been successful. Death is beaten. If my narrative fulfills its intent, others will understand what rich and meaningful lives Kristin and Johnny led. The meaning of their lives and mine will endure even when I die.

 

 

brown pendant lamp hanging on tree near river
Photo by Rachel Xiao on Pexels.com

Am I Writing a Best Seller?

low light photography of books
Photo by Suzy Hazelwood on Pexels.com
a thought-provoking question

In her most recent email to fellow writers, my friend, and colleague, Erin Donely, challenged her readers with the question,” Is being a ‘best seller’ the best idea?”

“Every book reaches a critical juncture in its development,” Erin states, “when you must decide: Do I want this book to reach the masses, or does it serve a more specific audience? It’s hard to know at first.” (Erin Donley, erindonley@erindonley.com. July 29, 2022.)

Erin emphasizes that authoring a book about your life can be – terrifying, traumatic, and cathartic. But if you aren’t clear about what you are doing, the whole project will turn into a major burden.

You must be clear about two major aspects of your memoir. What is its purpose? Who is its ideal audience? The answers to those two questions will give a memoir its direction and its organizing principles. Without them, you have nowhere to begin because you don’t know where you are going.

have a higher purpose

To ensure that your book serves its highest purpose and reaches its most ideal audience, Erin suggests, you need to ask yourself why should this book be written. Who will benefit from reading these words? And most importantly, what do I need to get this work done?

Answering these questions correctly, she promises, will “set you free.”

So, I challenged myself to answer Erin’s questions, to fill in her blanks.

Starting with the question, “Who needs to see these words beside me?” I formulated the following.

“More than anyone, I want all the people who supported me as I cared for Kristin and Johnny, my two extraordinary children, to read it as soon as it’s available to them. Every one of them needs to know what their strength and caring meant to me and to my children, how they sustained me and kept me going when I thought I’d never make it, and how much I will always thank God for bringing them into my life.”

These helpers and supporters were family members, friends, neighbors, teachers, care workers, and other parents of persons with disabilities. Like angels, there always was “someone,” just the right “someone” for the moment. I know they won’t all find themselves directly referenced in the memoir, but I hope they pick up the vibes of gratitude that the book will carry.

all parents need to know

In speaking directly to those who upheld me throughout my children’s lives, I hope to speak indirectly to all parents. Raising a child, any child, from infancy to adulthood, is a challenging task and they don’t have to go it alone. We all need support. Hopefully, parents hear me say, “Open yourselves to help whenever it’s available.” I didn’t do that as often as I should have.

When I envision speaking directly to this audience, Erin feels confident that I’ll set my book free – “from having to do the heavy lifting that commercially viable books require.” I can draft our story without seeking expert advice about my children’s medical conditions and without comparing my book to others on the same topic.

the toughest question

That leaves me with Erin’s last and very central question, “What do I need to get it done?”

At this point, the whole story is there – all twenty-seven chapters of it! You’re right. You don’t want to read twenty-seven chapters and I don’t blame you. I am working hard to hone it down to ten succinct chapters, following the advice of one of my other mentors, writer, Ellen Blum Barish (http://www.ellenblumbarish.com/). She suggested last fall that I pick a number and stick with it. “Your instinct for an important number can be a true guide,” she assured me. She also said, “Find the stories that make Kristin and Johnny ‘Pop off the page.’” I’m trying to do that. Johnny adored everything Seuss and would have loved her advice.

Another respected mentor Marian Roach Smith (https://marionroach.com/)has helped me seek “the turn for home” like a good racer. I’m doing my best to keep pace. The memoir is not a never-ending story. It’s coming closer every day to being a finished project.

Thank you, for hanging in there with me.

 

 

 

 

 

 

person using typewriter
Photo by Min An on Pexels.com

The Value of Community

Together
Idea of community

Everyone’s support system looks different. Thus, what defines ‘community’ for me may not at all resemble your idea of community. We do, however,  share a common need for a community of some sort. We cannot survive without it. Sometimes our community can be as small as one other caring person who sees us through a particularly tough, but very private time. At other times, we need the support of a much broader group of people.

seeking support

Ironically, many of us believe that we should be able to cope with life’s challenges on our own. We hesitate to look for help or seek group support.

community of mothers

That was true for me through many of the earlier years of caring for my children with special needs. It wasn’t that I didn’t know the value of community. In fact, I totally immersed myself in the community of La Leche League, an international association of breastfeeding mothers.  We supported one another by gathering together and sharing information via phone calls, letters, books, and a formal newsletter.

Within that group my awareness of how important peer support could be grew and solidified. Many of the mothers I knew in LLL would never have been able to breastfeed without the help of the group. Others would have felt isolated by their choice to breastfeed at a time when most babies were bottle fed. Instead, they found comradery and a sense of purpose.

without community support

Yet, this dependence on community did not, for me, carry over into coping with the multiple challenges I encountered as I tried to provide the best life possible for my two children with increasingly serious intellectual disabilities. I never sought out a support group of other parents with the same challenges. In that endeavor, for reasons I cannot explain, I felt compelled to handle my struggles on my own. I did my best to present to the world a picture of a mother who had it “all together.” Yet, every day the weight of my responsibilities sunk my soul in a sea of overwhelming despair.

community finds me

I did not drown, however, because even though I didn’t seek community, it found me and saved me from isolation and alienation. At first, those who reached out did not have children with special needs but all the same, they empathized with me because every parent has struggles and times they cannot cope. Even when I didn’t ask for help, they offered it because in the real world people have no choice. We are compelled to build community because we are survivors.

two-mother community

So many people gifted me in this way along the way, it would be impossible to name them all, but some folks stand out because they threw a lifeline at a time I might have otherwise disappeared below the raging waters.

First in line are the many young women who took time out of their own life to join our family as second mothers to my children. They made it literally possible for me to get through the day without collapsing. Beyond that, as strong young women not afraid to take on the hard task of caring for children with intellectual disabilities and seizures while at the same time they pursued their own important goals, they provided a myriad of role models for my daughters as they grew up. My heart sings today because several of those women now mothers, even grandmothers, themselves remain in touch with me.

lessons in community

Although our middle daughters, Betsy and Carrie, did not have to cope with intellectual disabilities, they did have the challenge of growing up in a family with siblings with special needs.  My openness to the help of these young women showed them that asking for help is okay, a valuable lifelong lesson.  I have seen as they grew into capable women that they not only know how to ask for help when they need it but they are also very attuned to helping others when they see those people struggling.

neighborhood community

Neither my wonderful mother’s helpers nor I would have thrived as well as we did if we had not lived in the wonderfully tight-knit neighborhood, the Seminary Townhouse Association. Within the heart of Chicago, this enclave of fifty-two homes functioned like a small village. We knew all our neighbors and they knew us.

The neighborhood had long-standing traditions of group festivities that included a bike parade and a talent show. Neighbors welcomed our entire family at these gatherings. These gentle folks understood Kristin and Johnny’s special needs and accommodated them without a fuss. The alleys of the association were more like village streets and in the center of our enclave was a huge green.

Up and down the alleys and over the green, children of all ages played together every day at every hour.  Mothers gathered on porches with mugs of coffee to watch the youngest kids. Jay’s walk every evening from the “L” stop at Fullerton Avenue to our home at the opposite corner of the complex often took him a half-hour because he chatted with almost all the neighbors over their back fences. Only in retrospect, I am able to truly appreciate the emotional protection living in the “Seminary” cocoon afforded me.

supporting the community

Being a part of such a strong community not only created an ongoing sense of support for me, it also made it possible for me to provide support for others. I didn’t need to always be the needy one. I could care for a neighbor’s child after school. Providing meals for a sick neighbor was an ongoing mission for me.

Being a part of the committees that planned our group events let me use my creative and organizational skills. In La Leche League I helped to plan and direct their twenty-fifth-anniversary convention. Because I could see how important these contributions were, they enhanced my sense of my own value at a time when our struggles to find a remedy for Kristin and Johnny’s increasing medical needs had hit a brick wall.

most important community

As the years went by these opportunities built strengths and skills. For which we were grateful when we participated in our most important community, Kristin and Johnny’s adult home, Misericordia.

Exuberant play
Photo by Artem Kniaz